Privacy Policy

The Foundation for C.H.O.I.C.E. (FFC) maintains the highest level of respect for the privacy of our donors. The Foundation does not sell, trade, or rent donor data. Further information on specific aspects of the Foundation’s commitment to protecting your information is provided below.

Effective date / Last modified: 11.9.23

Donor’s Bill of Rights

At Foundation for C.H.O.I.C.E. We value the support of our donors and take pride in our responsible stewardship of your support and information. The Foundation and our employees are committed to following the Association of Fundraising Professionals Donor Bill of Rights to let you know that your commitment to us, in turn receives a commitment from us: 

“Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To ensure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the nonprofit organizations and causes they are asked to support, we declare that all donors have these rights: 

I. To be informed of the organization's mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.

II. To be informed of the identity of those serving on the organization's governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities. 

III. To have access to the organization's most recent financial statements.

IV. To be assured their gifts will be used for the purposes for which they were given.

V. To receive appropriate acknowledgement and recognition. 

VI. To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law.

VII. To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.

VIII. To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.

IX. To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share. 

X. To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.”

Data Collection & Security

Information Collected:

FFC collects personal information from donors for the purposes of processing payments, donations, and communicating with donors about the Foundation, as well as conducting the operations of the Foundation including fundraising and patient support. This information may include name, amount donated, address, telephone number, donor comments, e-mail address, and any other personal information provided (“Donor Data”). For donations by check, Donor Data also includes the data visible on the check.

As part of providing an online experience, FFC  may store various data that are collected as part of standard web operations (including, but not limited to, IP addresses and cookies). The Foundation may use this data for purposes described in this policy, including analytical needs and improved functionality of our website. FFC makes limited use of cookies, including third party cookies (such as cookies from payment processors), to track sessions, help store data, and fulfill the purposes set out in this policy. You can prevent or delete our cookies by adapting your browser settings, although this will likely affect the functionality of the website.

Donor Data:

Donor Data may be used for these kinds of purposes:

• Distributing receipts and acknowledging donations

• Informing donors about upcoming fundraising and other activities of FFC

• Internal analysis, such as research and analytics

• Record keeping

• Reporting to applicable government agencies as required by law

• Surveys, metrics, and other analytical purposes

• Other purposes related to the fundraising operations

Anonymous donor information may be used for promotional and fundraising activities. Comments that are provided by donors may be publicly published and may be used in promotional materials. The Foundation may use available information to supplement the Donor Data to improve fundraising efforts. The Foundation may allow donors the option to have their name publicly associated with their donation unless otherwise requested as part of the online donation process. FFC uses data gathered from payment processors and other service providers only for the purposes described in this policy.

Security:

FFC is committed to protecting donor personal information from unauthorized access, alteration, disclosure, or destruction. The Foundation undertakes a range of technology and security practices, including data encryption, password protection, and other strict policy measures to protect sensitive data and safeguard the privacy of identifiable information from unauthorized access or improper use.  Furthermore, our organization values and policies are committed to the protection of user information, and as such we limit employee access only to authorized persons and processes.

Payment Processors and Other Service Providers

Payment processors allow donors to give electronically using a payment services account, a credit card, or other payment method. FFC works directly with these processors, and employs due diligence to ensure the integrity of these organizations. However, these processors do collect certain information from donors and purchasers. Please consult their respective privacy policies to determine their practices.

Contact & Solicitation Policy

Telephone Solicitation: 

FFC does not perform general phone solicitation of the public.

Email Policy

Email is an efficient means of communicating with our constituents. Foundation programs regularly communicate with their constituents by email. All mass emails include an unsubscribe button. The Foundation respects your desire to opt out of email distribution lists.

If you have questions, or would like to remove your information from our records, please contact us at info@foundationforchoice.org or call 972-731-2620.

1. Personal data we collect and their sources

1.1. Personal data collected directly from you
We generally collect personal data directly from you (electronically, in writing) by way of, among others, website forms, messages you address to us, and communications with us at our fundraising and promotional events and other activities. We also collect data from you when you make a donation through our Website. This information includes the following:

• 1.1.1. Donor Data, such as title, name, suffix, contact details including address, telephone number, e-mail address, company, selected Family Fund, if any, selected gift direction, if any, amount donated, donor comments, payment details and any other personal data provided. For donations by check, this information includes also the personal data visible on the check. If you pay by credit card, we do not store your credit card information, bank account numbers, or other financial account data sent directly to our online payment processing services.

• 1.1.2. Prospective Donor Data, such as the information you have provided to us at an event organized by Foundation For C.H.O.I.C.E or other fundraising activities. Such information may include the information from your business card and / or other information you have provided to us such as your title, name, contact details including address, telephone number, e-mail address.

1.2. Personal data automatically collected from your device
We collect certain personal data directly from your device, when you visit our website or a FFC app downloaded to your mobile device. This information include the following:

• 1.2.1. Device and Browser Information, such as information about your computer and / or device, including device type, IP address, device identifier, and operating system.

• 1.2.2. Information and Statistics on Website and Mobile App Usage, such as information about your use of our website or app, webpages visited, including content viewed or downloaded, time spent on webpages, links clicked. To achieve these purposes, we use [cookies, web beacons, pixel tags, or other technologies]. 

1.3. Personal data we receive from third parties

• 1.3.1. In some cases, we may receive certain personal data from third parties such as our existing Donors, who have indicated that you may be strongly interested in our organization’s mission and activities, and / or in donating to fund research, expand knowledge, and advance care for the NF community (protective donors).

• 1.3.2. To the extent you use our online tools provided by our third party providers, such as online payment service providers, they may provide us with certain personal data.

• 1.4.2  For FFC mobile app users, more information can be found here for Apple, or Android users.

2. Purposes

2.1. We set below the purposes for which we process personal data of Donors, our website visitors, and, where indicated, Prospective Donors.

In accordance with applicable law, we process Donor Data and, where indicated, Prospective Donor Data, for the following purposes:

• 2.1.1. To process payments and donations, including to distribute receipts and acknowledge donations;

• 2.1.2. To enable our service providers to carry out certain functions on our behalf, including payment processing, verification, technical functions, security and / or integrity protection of our activities, including our databases and systems, and for business continuity reasons, as well as other functions, as may be required, in order to process your donation;

• 2.1.3. To build a Donor and Prospective Donor Registry in order to keep records of Donors’ donations, and a database of Donors and Prospective Donors;

• 2.1.4. To send you marketing communications, including to inform Donors and Prospective Donors about upcoming fundraising and other activities of Foundation for C.H.O.I.C.E, where relevant, of the  Foundation, which we consider may be of interest to you. We will not send you such marketing materials if you have opted out from this option. You may unsubscribe via the unsubscribe button included in each marketing email we send to you;

• 2.1.5. To conduct the operations of Foundation For C.H.O.I.C.E, including to provide fundraising, and to carry out internal analysis, such as research and analytics of donations in order to determine a fundraising strategy, and surveys, metrics, and other analytical purposes;

• 2.1.6. To respond to your questions and various communications with you, for example your inquiries sent to the email address indicated on our website, i.e. info@foundatinforchoice.org;

• 2.1.7. To comply with applicable law, for example, in response to a request from a court or a regulatory body, where such request has been made in accordance with the law. In accordance with applicable law, we process information of website visitors for the following purposes:

• 2.1.8. To analyze our website traffic;

• 2.1.9. To ensure security of our website; and

• 2.1.10. To improve functionality of our website.

2.2. The bases for the processing of personal data for the purposes described above will include:

• 2.2.1. Fulfilling a contract of donation we have with you, or will have with you at your request;

• 2.2.2. Our legitimate interests, as outlined in paragraphs

• 2.1.2 to 3.1.10 above;

• 2.2.3. Consent that you have granted to us;

• 2.2.4. Establishment, exercise or defense of legal claims; or

• 2.2.5. Compliance with a legal obligation to which we are subject.

2.3. In the event that we use your personal data for purposes not specified above, we will inform you about such purposes for processing your personal data and, when required, of our legal basis for doing.

3. Disclosure of your information

In some circumstances, when we wish to or are compelled to disclose your personal data to third parties. Such disclosure will only take place in accordance with the relevant applicable laws and for the purposes listed above. These scenarios may include disclosure:

3.1. To our outsourced service providers, such as hosting service providers, IT providers, server security services, IT system administrators and support services, and providers of fundraising strategies.

3.2. To our outsourced online payment service providers; currently such provider is Givebutter, with whom we act as joint controllers for the purpose of online payments;

3.3. To public authorities where we are required by law to do so and to defend or enforce our rights, protect our property, assets or safety of others.

3.4. Some links in our website will take you to third party websites or our social media pages located on social media sites such as LinkedIn. These are governed by privacy policies of companies operating such websites, which are available thereon.

4.  Retention of personal data

Your personal data will be retained as long as it is reasonably necessary for the purposes listed above or as required by applicable local law. Retention periods can vary based on the type of information and how it is used. We retain personal data in accordance with the criteria that include legally mandated retention periods, e.g. for tax audit purposes, pending or potential litigation, our intellectual property or ownership rights, contract requirements, operational directives or needs, and historical archiving. Please contact us for further details of applicable retention periods.

5. Data subject rights

5.1. You may exercise the following privacy rights regarding your personal data, if you are a donor residing in the EEA or you are visiting our website from the EEA, or where the GDPR, or other applicable EU data protection laws so provide, whereby these rights are subject to the conditions and exceptions laid down in the GDPR. Should you wish to exercise your rights, please contact us .

• 5.1.1. Access – You have the right to obtain from us confirmation if your personal data is being processed, certain information in this regard and a copy of the personal data undergoing said processing.

• 5.1.2. Rectification – You have the right to request that inaccurate personal data be corrected and to have incomplete data completed.

• 5.1.3. Objection – You have the right, when we process your personal data based on our or a third party’s legitimate interests, to object to the processing of your personal data for compelling and legitimate reasons relating to your particular situation, except in cases where legal provisions expressly provide for that processing. In addition, you have the right to object at any time where your personal data is processed for direct marketing purposes. (Please note that even if you object to the use of your personal data for direct marketing purposes, we will still send you responses to your questions.)

• 5.1.4. Portability – You have the right to receive a copy of the personal data that you have provided to us in a structured, commonly used and machine-readable format, and you have the right to transmit them to other data controllers. This right only exists if the processing is based on your consent or a contract and the processing is carried out by automated means.

• 5.1.5. Restriction – You may request that we restrict processing of your personal data if

  • i. you contest the accuracy of it – for a period we need to verify your request;

  • ii. the processing is unlawful and you oppose the erasure of it and request restriction instead;

  • iii. we no longer need it, but you tell us you need it to establish, exercise or defend a legal claim; or

  • iv. you object to processing based on public or legitimate interest – for a period we need to verify your request.

• 5.1.6. Erasure – You may request that we erase your personal data if it is no longer necessary for the purposes for which we have collected it, if you have withdrawn your consent and no other legal ground for the processing exists; if the processing is unlawful, or if erasure is required to comply with a legal obligation.

• 5.1.7. Right to lodge a complaint – You also have the right to lodge a complaint with a supervisory authority, in particular in the EEA country of your residence, or the location where the issue that is the subject of the complaint occurred.

• 5.1.8. Right to refuse or withdraw consent – In case we ask for your consent to certain processing, you are free to refuse to give consent and you can withdraw your consent at any time without any adverse negative consequences. The lawfulness of any processing of your personal data that occurred prior to the withdrawal of your consent will not be affected.

7.  Children

Through our website, we do not knowingly collect any information, including personal data, from children under 16 years of age for the purposes identified  above. If you believe that we have inadvertently collected personal data from a child under the age of 16 for such purposes, please contact us at the address below and we will take immediate steps to delete the information.

8.  How to contact us

If you have any questions, comments or requests regarding this Privacy Policy, or you wish to exercise your data protection rights, please direct your request to our Data Protection Officer, that is:

Address:
Foundation for C.H.O.I.C.E.

5465 Legacy Dr. Suite 650

Plano, TX 75024

Telephone: 972-731-2620

E-mail address: info@foundationforchoice.org